EMIF data catalogue now accessible
The European Medical Information Framework (EMIF), which Department of Clinical Epidemiology is a partner in, has extended the access to the EMIF Data Catalogue to researchers beyond EMIF within the research community, linked to its mission of improving identification, access and assessment, and (re)use of health data within the European Union. The Catalogue will allow users to explore the population-based (e.g. Electronic Health Record (EHR)-derived, Regional databases, etc.) and cohort-derived (predominately within Alzheimer’s Disease) data sources who are partners within EMIF and have consented to provide such information for the purposes of bona fide researchers wanting to explore potential data partners for studies. Currently 14 population-based and 46 cohort-based data partners are contained within the catalogue, from across 14 countries collaborating within EMIF. The Catalogue in its current form provides initial information, but the EMIF group expects to see further development and expansion of capabilities to assist users to investigate data sources. The catalogue is the first tool of the EMIF platform to provide wider access. Within the next year, the group behind EMIF plans to deploy platforms for researchers to be able to go beyond the catalogue phase right through suitability evaluation and ultimately conducting studies with data source collaborators. For more information please see the EMIF website.